REGIONAL & NATIONAL RESOURCES

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Davis Phinney Foundation for Parkinson's

Website: davisphinneyfoundation.org

The Davis Phinney Foundation for Parkinson's is an organization dedicated to helping people with Parkinson's to live well.  Their website is an excellent resource for information on a wide range of topics pertinent to people with Parkinson's and their care partners.  They offer many very helpful worksheets as well as essential exercise videos.   Be sure get your FREE The Every Victory Counts® manual which provides people with Parkinson’s—and their family—the tools needed to take control of their treatment through proactive self-care.

American Parkinson's Disease Association

Website: apdaparkinson.org

APDA is a national organization sponsoring centers of excellence across the country. The closest center to Brevard co. is Mayo Clinic Jacksonville.

Also available on their website:

APDA's First Responder Parkinson Awareness Training 

The unique symptoms of Parkinson’s can be mishandled and misunderstood in emergency situations. The American Parkinson Disease Association (APDA) has partnered with the Office of Continuing Professional Education (OCPE) at Rutgers, The State University of New Jersey, to provide this new web-based program aimed at educating police, fire fighters and emergency service providers to help them recognize the unique symptoms and needs of those with Parkinson’s disease and enable them to provide the best and most appropriate care.

ADPA National Young Onset Center 

This resource provides information and supportive resources that address issues specific to young people living with Parkinson's and their families including relationships with spouses, parents and children, age-specific medical information, common psychological and/or emotional issues as well as career and long-term financial planning.

APDA South Florida Chapter 

This website features Parkinson's related information and APDA events and resources in the South Florida area.

Spotlight on Parkinson's Disease Webcast Series

Website: apdaparkinson.org/webinar/

In January 2016, the APDA launched its “Spotlight on Parkinson's Disease” webcast series to highlight topics important to people with PD, care partners, and healthcare professionals. To date, there have been 9 programs in the Spotlight Series.

 

Topics include:  
Spotlight on Parkinson's Disease: Communication and Intimacy
Keynote Speaker: Sheila Silver, MA, DHS, ACS 

Spotlight on Parkinson's Disease: Living Well Everyday
Keynote Speakers: Lisa Sommers, MA, CCC-SLP and Stacey A. Zawacki, DrPh, RD 

Spotlight on Movement Function: Coping With On/Off Periods
Keynote Speaker: Lisa M. Shulman, MD

Spotlight on Addressing Motor and Non-Motor Symptoms – The Changing Landscape
Keynote Speaker: David G. Standaert, MD, PhD

Spotlight on Parkinson's Disease – Staying on Your Feet – Balance Matters
Keynote Speakers: Tami Rork DeAngelis, PT, DPT, GCS and Anna DePold Hohler, MD, FAAN

Spotlight on Parkinson's Choices – Playing an Active Role in Your Treatment Plan
Keynote Speakers: Jaime Hatcher-Martin, MD, PhD and Harrison Walker, MD

Spotlight on Well Being – It's A Family Affair
Keynote Speaker: Roseanne D. Dobkin, PhD

Spotlight on Clinical Trials – What You Need to Know
Keynote Speakers: Marie Saint-Hilaire, MD, FRCPC and Ray James, BS, RN

Spotlight on Treatment Advances
Keynote Speaker: David G. Standaert, MD, PhD

Parkinson's Disease Foundation

Website: parkinson.org

Phone: (212) 923-4700

A leading national presence in Parkinson's disease research, education and public advocacy. Our toll-free HelpLine can answer questions about Parkinson's disease, provide referrals to doctors and support groups where available and offer free educational materials and programs.

Partners in Parkinson's

Website: partnersinparkinsons.org

Partners in Parkinson's is a collaboration between the Michael J Fox Foundation and AbbVie Pharmaceuticals with the aim of "Connecting you with resources at every stage of the disease".  The site provides information on living with Parkinson's and putting together a care team.  It offers useful tools and education resources.  Webinars and other events are also sponsored.

Michael J. Fox Foundation

 

Website: michaeljfox.org

The Michael J. Fox Foundation is dedicated to finding a cure for Parkinson's disease within the decade through an aggressively funded research agenda and ensuring the development of improved therapies for those living with Parkinson's today. Source for contributing to latest research. Good resource for fund raising, political action and community advocacy.

National Institute of Neurological Disorders and Stroke

Website: inds.nih.gov/

NINDS is part of the National Institute of Health. The mission of NINDS is to reduce the burden of neurological disease. They conduct research, provide grants to public and private institutions and individuals in fields related to its areas of interest, operate a program of contracts for the funding of research and research support efforts in selected areas of institute need, provide individual and institutional fellowships to increase scientific expertise in neurological fields, and collect and disseminate research information related to neurological disorders.

Dance for Parkinson's

Website:  danceforparkinsons.org/

Dance for PD® offers internationally-acclaimed dance classes for people with Parkinson’s disease in Brooklyn, New York and, through their network of partners and associates, in more than 120 other communities in 16 countries.  DVDs are also available for purchase.  

Link to Orlando classes and more

Link to streamed classes

The University of Florida Center for Movement Disorders

Website:  https://movementdisorders.ufhealth.org/for-patients/clinics/parkinsons-disease-center-of-excellence/

 

The University of Florida Center for Movement Disorders and Neurorestoration is a National Parkinson's Foundation Center of Excellence It is located in Gainesville, Florida and is affiliated with Shands Hospital. The center offers a world-class patient centric interdisciplinary experience. Below are just a few of the offerings available there:

  • The potential to get your care from over 10 interdisciplinary specialists in a single day on a single floor of a single building

  • The world-renowned fast-track interdisciplinary work-up and care for deep brain stimulation surgery (DBS) for Parkinson’s disease and other movement disorders

  • On site MRI, speech & swallowing treatment, and rehabilitation options

  • Expert Deep Brain Stimulation (DBS) Troubleshooting clinic where people travel from all over the world for diagnosis and management of DBS related problems or issues.

 
 
 
 
 
 
 
 
 

Brevard Parkinson's Support Group is a 501(c)(3) organization. All donations fund group-sponsored initiatives throughout Brevard County, are 100% tax deductible, and greatly appreciated.

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